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Writing a comment to FDA about proposed REMS
I received a response from a post I submitted on Chronic Pain Connection: FDA REMS Proposal Karen Lee Richards Monday, January 18, 2010 at 09:55 PM I would also encourage you and everyone concerned to...
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Living with FTD-Frustration of Diagnosis and Support for FTD Patients
I am going to be writing more posts on what it is like living with FTD in the near future. This morning, I want to talk about a particular frustration that I share with some other people who have FTD...
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What is missing in this picture?
I felt like I just had to say something. It has been annoying for the past few months. In the last two days I have read an article providing information about FTD and information about a conference....
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Anti-depressants may not work
I just read an article in Newsweek that says antidepressants may be no more effective than placebos. I have been on several antidepressants. My relationship with antidepressants started when I was...
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Chronic pain- Recent Updates
Hi everyone, Recently, I’ve been having a difficult time with various illnesses so I am a little behind on posting. I have found multiple articles that may be helpful to those of you with chronic...
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Brain Scan-I Feel Your Pain
I just read an article about a brain scanner that may be able to help assess pain. “The definition of pain is that it is subjective, and until now an objective measurement has remained elusive,” says...
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Updates on Pain
Hi Everyone, I have had a lot going on and I wasn’t able to post last month but I am back and hope to write three posts this week. Most of you don’t know I like to visit second life now and again,...
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LIVING WITH FTD: People spreading the word about FTD.
In this post, I want to talk about people and groups who are spreading the word about FTD. FTD is still a relatively unknown disease and it is people on the front lines and in the trenches who are...
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For Those Who Are Not Heard, Part 1
The other day, I was trying to make a referral and couldn’t remember how to spell my neurologist’s first name. I asked Selch. It’s not at all a common name. He did a quick search on what he thought...
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For Those Who Are Not Heard, Part 2
Doctors often do not listen to patients who have FTD, and will tell them that they do not have FTD. They know so little about the wide variety of symptoms associated with FTD disorders, and how these...
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